My child has been diagnosed with autism… now what?

Cute little boy with bookThe statistics are alarming. According to the CDC (2014) the prevalence of autism in U.S. children increased by 119.4 percent from 2000 (1 in 150) to 2010 (1 in 68). The incidence of autism is, without question, on the rise and can only be partially attributed to improved diagnosis.

But, what is Autism, exactly?

Autism or Autism Spectrum Disorder (ASD) is a set of complex — and frequently misunderstood — disorders of brain development. According to a recently published article by Emily Willingham in Scientific American, “These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors.” For parents, understanding the Autism Spectrum is often confusing, in part due to changing definitions and popular misconceptions. Below are some answers to the questions that parents ask most frequently.

What is the difference between Autism and the Autism Spectrum?

In May 2013, the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) merged all Autism disorders into one diagnosis of ASD and eliminated all subcategories – from Asperger Syndrome, to Childhood Disintegrative Disorder, to Autistic Disorder.

Are boys or girls most at-risk for developing ASD?

ASD is 4-5 times more common among boys than girls. CDC statistics say that 1 out of every 42 boys will be diagnosed, as compared to only 1 in 189 girls in the United States. A medical diagnosis can be obtained in children as young as 2 years old.

What are the symptoms of ASD?

The advocacy group Autism Speaks defines ASD symptoms as, “associated with intellectual disability, difficulties in motor coordination and attention and physical health issues such as sleep and gastrointestinal disturbances. Some persons with ASD excel in visual skills, music, math and art.” ASD is a spectrum, each child is unique, and not all exhibit “classic” symptoms, which is why diagnosis is crucial.

What causes ASD?

Research into the root causes of ASD have made great strides forward in recent years. And, while there is still no one definitive cause, scientists now point to a combination of factors including rare gene mutation, abnormalities in brain structure or function, and environmental factors influencing early brain development.

How does environment pose a risk?

Outside factors, by themselves, do not cause autism. In combination with a genetic predisposition, they may modestly increase risk. Factors include:

  • advanced parental age at time of conception (of either parent),
  • maternal illness or problems during pregnancy or delivery, and
  • environmental toxins.

My child has been diagnosed with ASD… now what?

Because ASD is a spectrum of related disorders, no “one size fits all.” However, there are many resources available for families:

The TEACCH Autism Program: a family-centered, evidence-based practice for autism, which offers flexible and person-centered support (all ages and skill levels). TEACCH is based in the “Culture of Autism” and stands for Teaching, Expanding, Appreciated, Collaborating, Cooperating and Holistic. Teachh.com

Autism Society, the leading autism organization in the U.S., provides information and support as well as plays host to the most comprehensive national conference on autism, attended by 2,000 people annually. Autism-society.org

Autism Delaware offers innovative local services, resources and support to individuals and families. Just a few examples include information on securing Medicaid, options for specialized services such as occupational therapists and speech therapists, and even respite care.DELautism.org

Need more help? Back to Basics serves the diverse needs of a range of students including those who have been diagnosed with autism. For more information, please call 302-594-0754.

Celebrating 30 years of excellence in education! Back to Basics Learning Dynamics is the undisputed leader in 1-on-1 tutoring in Delaware and southeastern Pennsylvania for over 60 subjects. The company offers a unique Department of Education-approved 1-on-1 K-12 Private School in Wilmington, Delaware and a Delaware Business and Trade School for ages 16 and older. In addition, the company offers translating and interpreting in 16 languages throughout Delaware. Back to Basics is the winner of numerous awards for academic and business excellence including the Better Business Bureau Torch Award for Marketplace Ethics.

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